Author Archives: Fatima

WANTED: A dynamic …

                                    WANTED: A dynamic, high-profile celebrity  To do for ME/CFS what Elizabeth Taylor did for AIDS, what Jerry Lewis did for muscular dystrophy, and what Michael J. … Continue reading

Posted in Advocacy, Celebrities with ME/CFS, Raising Awareness | Tagged , , , , , , | 4 Comments

New Clinic Needs Your Vote

The Aviva Community Fund competition has returned with another $1 million to encourage Canadians to lead, empower and support community initiatives across the country. The Aviva Community Fund enables groups or individuals to submit a community initiative for funding. Launched … Continue reading

Posted in Fundraising Efforts | Tagged , , | 1 Comment

President Obama Lives Up to His Promise

On April 21, 2011 I posted about a town hall meeting in which President Obama promised Courtney Miller to look into ME/CFS research at the NIH. Today, Cort Johnson of Phoenix Rising reports that, in a letter addressed to Courtney Miller last … Continue reading

Posted in President Obama, Research | Tagged , , , , , , , | 2 Comments

How to Regain Control of Your LIfe

This post is for Evelyn Metts (and others) who wrote me about her 26-year-old son who has just been diagnosed with ME  (or CFS). She asked how people could regain control of their lives considering there is no cure for … Continue reading

Posted in Treatments | Tagged , , | 2 Comments

Andrew McGorrian’s ‘mis-treatment’ in Hawaii

According to Dr. Jamie Deckoff Jones’ June 23 blog post, Andrew McGorrian was responding very well to the treatment he was getting at her clinic in Hawaii. She reported that he was doing “brilliantly” and that ”what has happened so … Continue reading

Posted in Children with ME/CFS, Treatments | Tagged , , , , | 7 Comments

Nice to get away

We just got back from the country for a little R&R away from the urban jungle. We went to the Laurentians, just an hour’s drive from Montreal. The Laurentians region, or Les Laurentides in French, is famous for its gentle rolling mountains, … Continue reading

Posted in Personal, Relaxation | Tagged , | 2 Comments

What’s it like to live with ME/CFS?

Has anyone ever asked you what it’s like to live with ME/CFS? Most people think you’re just ‘tired’ or ‘anxious’. Just like the HR person in charge of disability claims at my workplace said to me, “I don’t want you … Continue reading

Posted in Personal, Raising Awareness, Respect, What is ME/CFS | Tagged , , | 2 Comments