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Author Archives: Fatima
WANTED: A dynamic …
WANTED: A dynamic, high-profile celebrity To do for ME/CFS what Elizabeth Taylor did for AIDS, what Jerry Lewis did for muscular dystrophy, and what Michael J. … Continue reading
Posted in Advocacy, Celebrities with ME/CFS, Raising Awareness
Tagged AIDS, Elizabeth Taylor, Jerry Lewis, ME/CFS, Michael J. Fox, Parkinson's, Philanthropy
4 Comments
New Clinic Needs Your Vote
The Aviva Community Fund competition has returned with another $1 million to encourage Canadians to lead, empower and support community initiatives across the country. The Aviva Community Fund enables groups or individuals to submit a community initiative for funding. Launched … Continue reading
Posted in Fundraising Efforts
Tagged Aviva Community Fund, Dr. Alison Bested, Kati Debelic
1 Comment
President Obama Lives Up to His Promise
On April 21, 2011 I posted about a town hall meeting in which President Obama promised Courtney Miller to look into ME/CFS research at the NIH. Today, Cort Johnson of Phoenix Rising reports that, in a letter addressed to Courtney Miller last … Continue reading
Posted in President Obama, Research
Tagged Cort Johnson, Courtney Miller, Harold Koh, HHS, Nancy-Ann DeParle, NIH, Phoenix Rising, President Obama
2 Comments
How to Regain Control of Your LIfe
This post is for Evelyn Metts (and others) who wrote me about her 26-year-old son who has just been diagnosed with ME (or CFS). She asked how people could regain control of their lives considering there is no cure for … Continue reading
Andrew McGorrian’s ‘mis-treatment’ in Hawaii
According to Dr. Jamie Deckoff Jones’ June 23 blog post, Andrew McGorrian was responding very well to the treatment he was getting at her clinic in Hawaii. She reported that he was doing “brilliantly” and that ”what has happened so … Continue reading
Nice to get away
We just got back from the country for a little R&R away from the urban jungle. We went to the Laurentians, just an hour’s drive from Montreal. The Laurentians region, or Les Laurentides in French, is famous for its gentle rolling mountains, … Continue reading
What’s it like to live with ME/CFS?
Has anyone ever asked you what it’s like to live with ME/CFS? Most people think you’re just ‘tired’ or ‘anxious’. Just like the HR person in charge of disability claims at my workplace said to me, “I don’t want you … Continue reading
Posted in Personal, Raising Awareness, Respect, What is ME/CFS
Tagged Chronic Fatigue Syndrome, ME/CFS, Queen
2 Comments
Update on Andrew McGorrian
Last May I posted about a little boy named Andrew McGorrian in Northern Ireland with severe ME/CFS whose family and friends were trying to raise money for treatment in the United States with Dr. Jamie Deckoff-Jones. I am happy to report that … Continue reading
Posted in Children with ME/CFS, Treatments
Tagged Andrew McGorrian, Dr. Jamie Deckoff-Jones, Northern Ireland
2 Comments
May 12 International Awareness Day 20th Anniversary
On Saturday May 12 please wear blue and save a blue ribbon to your computer to help raise awareness for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, or purple for Fibromyalgia. The month of May is ME/CFS and FM Awareness Month, and 2012 marks the 20th anniversary for an International May 12th Awareness Day. … Continue reading
Don’t Forget to Sign the Petition
Kati says it’s almost time to deliver the petition to the Canadian Minister of Health, so if you haven’t signed it yet please click here . Also, don’t forget to share this petition with family and friends on Facebook and … Continue reading
Raising Awareness for ME/CFS 