Category Archives: Raising Awareness

WANTED: A dynamic …

                                    WANTED: A dynamic, high-profile celebrity  To do for ME/CFS what Elizabeth Taylor did for AIDS, what Jerry Lewis did for muscular dystrophy, and what Michael J. … Continue reading

Posted in Advocacy, Celebrities with ME/CFS, Raising Awareness | Tagged , , , , , , | 4 Comments

What’s it like to live with ME/CFS?

Has anyone ever asked you what it’s like to live with ME/CFS? Most people think you’re just ‘tired’ or ‘anxious’. Just like the HR person in charge of disability claims at my workplace said to me, “I don’t want you … Continue reading

Posted in Personal, Raising Awareness, Respect, What is ME/CFS | Tagged , , | 2 Comments

What To Do When Your Friend Has An Invisible Illness

There are many great YouTube videos on ME/CFS (or simply ME as it is now called, thanks to the New International Consensus Criteria for ME ); however, I have recently come across one that is clear, informative and factual. It’s titled What To … Continue reading

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New Web-Based Television Program Ensures Coverage of ME/CFS Developments

Linda Gasparello of White House Chronicle reports in her June 7, 2011 article that there is a new web-based television program which will help draw attention to ME/CFS. The program is called ME/CFS Alert and can be accessed on the YouTube Channel … Continue reading

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Beautiful Article by Columnist Llewellyn King

Nationally syndicated columnist and author Llewellyn King has been writing for newspapers for over 50 years. King is executive producer and host of “White House Chronicle” on PBS. Lately, King has been writing about the plight of ME/CFS sufferers. He says in 2010 he … Continue reading

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Two Powerful Testimonials at the NIH State of Knowledge Conference on ME/CFS

The State of Knowledge Conference is expected to highlight what the biggest medical research funder in the world, the NIH, considers worth researching in ME/CFS. It is also supposed to be the basis for an sizeable grant for research into … Continue reading

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Writer and Broadcaster Llewellyn King Writes About the Plight of ME/CFS Sufferers

Nationally syndicated columnist and author Llewellyn King has been writing for newspapers for over 50 years. Recently, he has written about the plight of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome sufferers. King says in 2010 he made more friends than in all … Continue reading

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