On Thursday May 12 please wear blue and save a blue ribbon to your computer to help raise awareness for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, or purple for Fibromyalgia.
For May 12 Awareness events and websites please follow the links below:
- ME/CFS Worldwide Patient Alliance
- Teenager with ME/CFS to do mountain walk
- Event at Queen’s Park in Toronto
- Niceguidelines blog on May 12
- Blue Ribbon Campaign
May Awareness Campaign for Neuro-Immune Diseases:
The Whittemore Peterson Institute (WPI) is building an international network of advocates who are dedicated to finding a cure for Neuro-Immune Diseases (NID). The advocates are all working together to advance the search for a cure, faster and more effectively.
The new term Neuro-Immune Disease (NID) refers to a group of illnesses that are the result of acquired dysregulation of both the immune system and the nervous system, often resulting in lifelong disease and disability.
Neuro-immune diseases such as those listed below deserve significantly higher research priority to identify and develop biomarkers of disease and more effective treatments for those who suffer.
- 1 in 300 suffers from ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)
- 1 in 150 suffers from fibromyalgia
- 1 in 110 children has autism spectrum disorder
- Lyme disease is a fast growing epidemic in the U.S. and Canada. Many sufferers go on to develop a chronic illness identical to ME/CFS.
- Multiple Chemical Sensitivity Syndrome
- Atypical MS- a neuro-immune disease that is getting significant research priority.
Symptoms may include mild to severe cognitive impairment, disordered sleep, severe headache, swollen lymph nodes, sore throat, malaise, postural orthostatic tachycardia, painful nerves, joints and or muscles, abdominal pain, nausea, and unusual fatigue.
These diseases most often follow an infectious or flu-like illness that does not fully resolve after standard treatment or over a typical course of time.
Challenges to the immune system, such as new or reactivated infections, major life stresses or exposure to toxins, can trigger a severe relapse or worsening of existing symptoms.
Recent published evidence associates human gamma retroviral infections with those who suffer from ME/CFS.
Neuro-immune diseases such as me/cfs, are acquired disorders that impact the body and the brain. They are on the rise and can last a lifetime.
These diseases impact tens of millions of people around the world, yet those who suffer have no approved treatments for underlying causes of the diseases or methods to prevent others from becoming ill.
You can sign up here to become an advocate for Neuro-Immune Diseases. Once May Awareness Month is over you can continue to be an advocate for Neuro-Immune Disease Awareness.